I talked to someone last week who used once to come to our CE groups, an adult client with cerebral palsy. It had been suggested to her that she should return.
She said “No I don't want to, it didn't work for me. So her two thousand Euros for a four-week block (it did not cost her anything as the charity would have paid) would have been wasted. But people save up thousands (Euros, Dollars, Pounds) for their summer camps, that also may not “work” for them. The client I spoke to is really saying that our conductive group was "snake oil" for her. Who can argue with her?
Some personal experience
I tried many of the therapies with him or accompanied him on the journey through carrying out some of them to the end, and being poor for a while because of the costs. Some worked because he did what was required for them to work, in a physical sense. Some worked because psychologically the attempt to do something good for himself really boosted him, and his mood boosted me and therefore his health and life improved.
We should not fail to consider that something that we may think has had no affect on a condition or illness may in fact bring about positive changes just as it can negative ones, or none at all. When a parent or disabled adults say that a snake oil brought about certain changes there is no wonder that they become indignant if someone refutes this possibility. We must be careful, it is possible that there are very positive changes in the lives of whole families.
What is it that is working here?
We have to recognise that something that we may think has had no affect on a condition or illness can bring about positive changes that we are not expecting.
Conductive snake oil
We should be so very careful in our criticism of how therapies work, snake oil or not, and how they are undertaken. There are many people, including myself, who would look at some conductive centres and say “Snake oil”. The parents are not there. This is not what it says is being sold, etc. But the snake oil on offer at such centres may still be doing those particular families a power of good.
It may be hard to convince families that it is better to take the road that it hardest to travel because the destination is more beautiful than the one at the end of the easier journey, the one along the "Give your child to the therapists to cure" road.