SUSIE MALLETT

My visitors today

Saturday, 16 January 2010

A conductor’s “Bit in Between Blogging” story

Nürnberg Hauptbahnhof, 15th January 2010

After a trip to the dentist and a tram ride across the city, on which I encountered the scene in the photograph above, I spent several hours today at the computer, answering mails and posting all the blogs that have been collecting in my head over my short holiday, in my notebook and in my lovely, new little netbook .

One of those postings is about how the fashion guru Gok Wan is helping disabled people, mostly women I think, care for their appearance, improve their body image and raise public awareness of disability.

Taking a break from blogging at last, I made a cup of tea and sat down with both the 2010 Guardian Weeklies that arrived together this morning. My attention was caught immediately by the headline of the Weekly Review in the 08.01.10 edition: "Look beyond appearances”.

This is the translation from Lingala of the name of a band from Kinshasa, Congo: Staff Bendi Bilili.

Look beyond appearances

Looking beyond appearances, this seemed to me quite the opposite to what Gok Wan is doing in his new show.

I read the three-page spread and let my cup of tea get cold!

Staff Bendi Bilili band members have all been left disabled by polio. They have been on tour in Europe and have been presented with awards for their music in Copenhagen. Their first album, recorded mainly on the streets of Kinshasa is called Trés, Trés Fort.

I did a bit of googling and found them on YouTube. At first I listened to what appears to be jamming in the streets and then to a song called Polio, with the words appearing in English on the screen. Polio is a song telling parents to look out for their children, to prevent disability and to care for those with disabilities.

It has quite a punch behind its gentle melody.

The band’s first album was recorded in Kinshasa Zoo, at night to avoid too much traffic noise, as there is no recording studio in the city.

Have a listen for yourself:

http://www.youtube.com/watch?v=JtVZhaZp6Ng
http://www.youtube.com/watch?v=KzCUcO_d1qI&feature=related http://www.youtube.com/watch?v=VaTZ5gAzkCY&feature=related

Notes

Guardian Weekly Review, 08.01.10 -

http://www.guardian.co.uk/music/2009/nov/01/staff-benda-bilili-congo-interview

Friday, 15 January 2010

Films

A five mile hike, 8th January 2010


Nearly home

I have been reading and thinking about the two conversations between Andrew and Norman:

http://www.conductive-world.info/2010/01/conductive-education-on-tv-in-maritimes.html
http://www.conductive-world.info/2010/01/education-education-education.html

If you haven’t seen them yet, first go and look at the dreadful film on “robot therapy”:

http://www.ric.org/aboutus/mediacenter/press/2009/0714.aspx

And see an article that goes with it:

http://www.usnews.com/health/managing-your-healthcare/heart/articles/2008/09/19/how-robots-are-aiding-stroke-rehabilitation.html

Now read on

I have been sitting and thinking about that dreadful film. Since I watched it I have been looking at other videos on the Internet, some awful, some nice. I also looked at Beth Brydon’s video-film:

http://www.youtube.com/watch?v=58Dt4RQfu4k

I was thinking the same as Norman. The nice ones are just that nice. By nice I mean here that they show hands-off, well-organised conductive programmes, they are saying the right things and not the wrong things, clients are busy and smiling. But even the nice ones are still showing children bending legs, lifting sticks, hurling bean bags and sitting in a circle.

  • Where are the films of someone doing the vacuuming?
  • Where are the films of someone using the plinth to hold on to, or to crouch down and paint the lowest bit of a painting that is hanging on the easel-plinth?
  • Where is the film of the wall bars being used to hang painting boards on, and at the same times to stand up on to reach the high bits, and help crouch down to reach the low bits, bend to reach a dropped paintbrush or sponge, then to stand again to paint some more?
  • Where are the films of adults making coffee, baking biscuits, sewing?
  • Where are the films of children building snowmen, sledging, lying on a bench in the woods in the heat of summer, rolling down a hill, marching through the lanes, tramping through deep snow, falling in its softness and making snow angels.
  • Where are the films of people absentmindedly trailing a hand though snow on a wall or picking the petals off a dandelion?
  • Where are those films of "just doing it"?

That is what is missing even from the nice films.

The nice films show Conductive Education as what it is in the centres where the films are being made so that it comes over as just another form of physiotherapy. Instead, it would be a good idea to get out there, filming the daily lives, making films to show how conductive lives are led. Or if you do keep on making the films in the groups, but transform the “one, two, three, four, five” into conductive living, right there in the centres.

If I have all the sorts of the activity that I listed on photographs, why can't centres get it on their films?

Once a conductor always one

Kapelle, 9th January 2010, Susie Mallett

Once an artist always one too!

Observing: I believe more and more that good observation is the most valuable skill that I have. This is a skill that I use constantly, not only when wearing both the artist’s and the conductor’s hat but when wearing the many others that I do too.

I have spent a few days with a friend


As well as a friend she is a conductor, and a mum. I am not a mum so I have really enjoyed watching my friend wearing her mum’s hat. She is as good in that hat, as she is in the friend's hat and in the conductor's hat.

I have not been in the position actively to observe small children without disability in their family environment, for a very long time. It is twenty-six years since my niece and my nephew were babies. That was a time when I spent many hours on the floor with these twins, being whatever animal came to mind, or later at a table being messy with paints, or on the beach being creative with sand.

I haven’t done anything quite like it since.

I was on holiday this week. Or was I?

My hats as usual just pile up, one on top of the other, rather than exchanging places. Often I just don’t seem to find the time to take one off before I put the next one on. Sometimes I think that I might need the last one just a bit longer, so I keep it on. So, on top of all the others hats, came the holiday hats!

During my holiday I have been many things, amongst them a tourist, a visitor, a conductor, a sort of auntie-cum-godmother, a traveller, a tramper, an artist, a babysitter, a friend, and a writer. And while wearing all or one of these hats I have been constantly observing, with my conductor hat right on the top.

There has been a wonderful snowy landscape to observe, to draw, to paint and walk through. On my journey there, I called in on a young man, a client of mine, , so my conductor hat got pulled back on top of my listening, artist, friend and walking ones. We walked miles in the snowy countryside, discussing the future, and had to do quite a lot of one-two, one-two to prevent both of us landing on the ground with a bump. There was lots of observation going on there, with my young client telling me about work and walking through deep snow, and trying his hardest to slide on the icy roads, all at the same time!

It is quite something to observe someone with athetoid cerebral palsy who, over the years has step by step learnt to walk, to jump, to climb stairs and to run, now sliding on the ice and snow, on purpose. It brought tears of joy to my eyes to observe this, and also when seeing him run his hand along a wall thick with snow, just as you or I would absent-mindedly do.

What is my reason for writing this posting?

It began when I started to realize that, although I have been on holiday, I have taken every available opportunity to learn. Maybe I could describe it as catching up with something that was missing in the library of information that I keep in my head. Now I am writing about the observation that I have been doing constantly in the company of my conductor-mum-friend, and her three-year-old and her three-month-old children, and my young adult client and his family when walking with him in the snow-covered hills.

I thought that if I were a mum I would never do anything else except sit and watch or play and watch, or talk and watch, or walk and watch. ,

I observed at breakfast, dinner and tea. I observed at the Kindergarten, on the sledge, at the ice-bar party in the street, and playing with tractors. I observed at feeding times and sleeping times, crying times and gurgling times. I even had a few hours all alone with the little one. Now that was a treat.

I observed while drawing them and for them, and while playing with them. I observed while walking along the street with them, while watching TV together and when reading bedtime stories with them.

I was surprised by how fascinated I was, especially when I was with the two little ones and their mum. At the same time as having a holiday I have been doing an awful lot of unexpected learning.

I have just realized why I stand at the window of my conductive room whenever I have a break from work. From there I can watch the disabled and not-disabled Kindergarten children playing in the garden.

I had more time and opportunity to do this while on holiday. I was observing not only the movements of the children and a young adult but also their developing social skills and the many environmental social influences.

I trained to be an art-teacher at college/high school level and I spent some time during this training with non-disabled children. Since then, however, I have worked only with children and adults with disabilities. I have had very little contact with children with no physical disability, really just with my sister’s twins and a few older children of my friends. I realize now that over the years this probably has not been enough!

I certainly had no intensive contact with non-disabled children during my conductor-training. The Hungarian students were training to be teachers at the same time as doing their conductor- training, so they were doing teaching-practices in junior schools at the same time as in the conductive groups. We British students at that time were already teachers; some were special-school teachers already working with disabled children. As student-conductors we worked in the groups at the PAI or at the Birmingham Institute but not in junior schools or Kindergartens as the Hungarian students did.

It is good news to hear recently that there is now an integrated Kindergarten at the Petö Institute. This will certainly be a great place to observe in just the way that I do here in Nürnberg.

How does this work in other centres where training takes place?

I have had a wonderful holiday but I have also had my eyes opened, not only opened to the movements and learning that takes place so quickly and before one’s eyes in babes-in-arms and infants, but also in the comings and goings of family life. Of course I know about this. I work in family contexts with my clients. But somehow this was different. I was with my friend. I was with my conductor-friend, my conductor-friend who is now also a mum.

We talked a lot about the things that we were both observing at her home. We talked some more about what we observe in our work and of the differences and similarities between these two worlds. One theme that kept cropping up was the enormous amount of spontaneity in a child without disability, and the importance of encouraging this at all times. We were not only observing the deftness of movement, the jumping up on a chair to fetch a hook from the kitchen wall to use as a crane, but the quickness of thinking, the problem-solving the deciding that this hook could do the job perfectly.

We both had a lovely time, me on holiday and with my friend having a-change-is-almost-as-good-as-a-rest break.

And my young adult client? What about him?

I think that, with our discussions about how to carry on our work together, he discovered a different side to conductive upbringing. We have plans for him to travel to visit me, to join my adults' groups and try living in a “sheltered” holiday flat. We plan trips to museums and art exhibitions. We want to learn how to use trains and buses, banks, cafes and restaurants. We still have a lot to do together and will continue with our long tramps in the hills.

Disability on the catwalk!

From my walk with my young client
January 9th, 2010,
Susie Mallett
Trudging

Sliding

Walking

Absentmindedly playing
I don’t have a television. I read the Guardian Weekly and Time Magazine, and very occasionally the (German) local daily rag. Sometimes I feel that I am a bit out of touch with what is going on out there in the big wide world so I catch up by reading timesonline.

That is just what I did while still on my holidays, and discovered this headline:

“Hallelujah! For everyone, there is a Gok Wan”.

A friend in England had sent me a book by this fashion-guru a couple of years back. So recognising the name I read further to find out what Gok was up to now, and why the papers were singing his praises.

Andrew Sutton in his blog today refers to an article in yesterday’s online Guardian, which tells about Tory Party plans to use efficiency savings in the equality bureaucracy to help disabled people take up public positions. In the Times article on Wednesday, I discovered that Gok Wan is also doing his bit to bring disability to the public’s notice. I think thathe probably gets the attention of rather more men-in-the-street, and women, than do the Guardian's politics pages!

The Gok Wan article goes on to explain that in his new series How to Look Good Naked . . .With a Difference he will be working with disabled women on and off the catwalk. He will help them, it says, to become confident again, to go clothes-shopping and generally to feel more positive about their bodies.

Clothes, shopping for them, wearing them, and finding designs suitable for wheelchair-users, are often points of discussion in my groups, especially amongst the teenagers and in the adult ceebral oasly groups. Not only amongst the women either.

Most of the topics that we cover and many more are here to read about in the Times article:

http://women.timesonline.co.uk/tol/life_and_style/women/fashion/article6986743.ece

As Gok Wan says, what he is doing is just a drop in the ocean and probably not going to change the world, or get improved access on the High Htreet or better designed clothes, but it will bring the problem to the attention of a lot of viewers.

Notes

How to look good naked -
Gok Wan, HarperCollinsPublishers
ISBN 978-0-00-725035-6

Andrew Sutton - Friday, 15 January 2010 UK: David Cameron on Conductive Education

Mária Hári

Mária Hári, March 1991, by Susie Mallett

Wednesday, 6 January 2010

Bric-a-brac

A coffee table full of bric-a-brac with personal meaning

Not everyone has a coffee table like mine

I have just read

Not surprisingly I am one of those individuals that Andrew mentions in this posting, with my own collection of bric-a-brac with personal meaning. Included in this, I have quite a lot of memorablia from Budapest!
I also have a wonderful coffee table, I have posted photographs of it here on the blog before. It is the place where my train makes its daily runs and it is underneath the track that the bric-a-brac has its home.

There you can spot all kinds of treasures, too many to name them all. There are some of those boot badges, some pens, some Socialistic money, Russian watches and old postcards.

Best of all there is my 'little black book', my Oklevel!

There is even a Brummie cab and an AA badge in the Budapest compartment! Now how did they get there?

Coppers and cabs

A group of taxi drivers and policemen from Brum did a sponsored drive from what was then the Birmingham Institute to the PAI in Budapest. I was working in the adults' department at the PAI at the time and we were all leaning out of the window when the convoy arrived. We were given handfuls of those lovely little boot badges, AA badges and black cabs to hand out to the clients and children.
Could Andrew's ebay-seller possibly be one of those cab-drivers or coppers?

Puzzling

Let's go!




"Brother and sister on the flower meadow"


Spray varnished and ready to start puzzling!

Over the years most of my young athetoid clients have loved to do jigsaw puzzles. On the other hand most, but not all, of my young diplegic clients have said : “Sorry but no they are not really for me”. Some were actually less polite and refused point blank even to have a try.

You really can’t make children enjoy jigsaw puzzles, however creative and motivating you are. They either like them or they don’t. Some may enjoy doing a puzzle as a joint activity but when left alone they loose interest. Others puzzle away to their hearts' content.

Not with diplegia

Jigsaw puzzles would be a great medium for teaching diplegic clients about turning things round as they look at them, recognising shapes, forms and spaces, matching colours, etc., but generally these children just don’t enjoy them.

I have found other games that they enjoy, that serve the same purpose. For example, making treasure hunts in the garden or a more confined space, where they can hunt for and collect “hidden” objects, are always a great success. They love to take instructions differentiating between left and right, up and down, over and under, beside or below, hot and cold.

This all works wonders in improving orientation and coordination, and the jigsaw puzzles remain packed in their boxes!

But with athetosis it's different

It really does seem to be a different story with my athetoid clients. Does anyone else notice this?

In my experience these clients are so patient while doing puzzles. They find their own ways to hold the pieces, turn them, slide, lift and even shove them into the correct position.

I have found that even if diplegic clients will do a puzzle with me, they have often little interest to do one alone, whereas the athetoid clients love puzzles and do all that they can to learn how they can complete one unaided.

They continue wanting to do puzzles long after they have out grown the subject matter on those with suitable size pieces.
.
My mother was an expert at finding just the right puzzle to fit every hand. She knew all about the hands and fingers of my clients, even though she was miles away in a different country. Most of my collection of puzzles was bought for me by my Mum at car boot sales!

But even with my Mum always on the look-out, eventually the age-appropriate pictures always have pieces too small for fumbly athetoid fingers to handle well.

What happens then?

We design our own of course, as can be seen in the pictures above.

We had great fun planning and painting this new puzzle. Now it is in pieces and, after a coat of spray varnish, tomorrow we shall see how easy it is to put together again.

PS

I love observing the different ways that children do jigsaw puzzles. I love to imagine what they are thinking as they pick up pieces and turn them over and over and over, at the same rate as the thoughts seem to turn over in their heads.

There are the children, usually those who have nimble fingers, who randomly pick up a piece and search for its home. Pushing and shoving and turning until it fits, oblivious to its form colour or pattern.

Then there are the children with less nimble fingers who spot a hole and try to fill it. These are the children who, when they have spotted the piece that they are looking for, then decide how best to grasp it to avoid too much turning, so that it fits easily into its space.

Monday, 4 January 2010

Scrabble

Bold

"Letters"

Just a snippet from my day

How is this for a good bit of conductive upbringing?

I have worked with the lady I visited this afternoon for many years, and today I learnt something new.

I already knew that she played Scrabble with her husband but I had assumed that they had done this pre-stroke too.

Today as I arrived for work the Scrabble board was on the table. My journey, despite the deep snow, had taken less time than I had planned, so I had caught them in the middle of their game.

I asked them how different it had been when they played after she had the stroke. I was surprised to discover that they had started playing only after the stroke, and that it was my client’s husband who had initiated it all and not a speech therapist or an occuptional therapist.

The husband had tried to work out how, as a layperson he could help his wife learn to read, to spell, to recognise and understand words, and generally to improve her communication skills. He went out and bought a Junior Scrabble board and set about his “upbringing” (for want of a better word).

He began with setting out the words himself from the letters that his wife had chosen, till slowly but surely she could find words, just short words at first, for herself.

They progressed to an adults' Scrabble board and this Christmas they treated themselves to the deluxe version.

What else I discovered today was that what had begun for my client’s husband as a means of helping his wife to begin communicating again has now become a passion. He told me that they still play every day and, what is more, nine times out of ten his wife wins!

On hearing this story I thought that it is not at all surprising that, when this family first heard about Conductive Education, thirteen years ago almost to the day, that they phoned me immediately.

They liked what they learnt about Conductive Education and are still as convinced now as they were then that to live conductively is their way forwards after a stroke.

Notes

Scrabble -

http://en.wikipedia.org/wiki/Scrabble

Red Letter days

"Winter arrived in my garden", January 3rd, 2010

A reflection upon Christmas

I have been discussing the Bah-Humbugness of Christmas with two of my friends over the holy days.

One of these friends actually celebrated Christmas Day just a little bit this year along with his wife. Their slight change of heart came about because his son brought his future wife to visit for a few days. Perhaps they felt that they had something to celebrate!

Although they did not go as far as to decorate a tree or hang up the paper-chains, Christmas didn’t sound quite as Bah-Humbug in their house as it often has sounded in the past. I believe they said that a bottle of beer had been opened, maybe even two!

The other friend remarked how nice it was to have the last of the bank holidays over so the world and its people could work as normal again.

I would be thinking the same if I still lived in a country where no public transport runs on Christmas bank holidays. I find that quite unbelievable, at a time when people want to visit friends and family!

Twelve lords a-leaping

So it seems things have got back to normal in England now, with the roll of the drummer’s drums. Not so here!

“Christmas” is still not over here in Bavaria. We and two other states in Germany, still have one more Red Letter Day to come. January 6th, Epiphany. This extra holy day comes after the twelve days of Christmas, which means that in many places of work and schools, Christmas only officially ends when the twelve lords stop leaping!

On January 7th the children can leap back to school, the factories can re-open, physiotherapy practises can get back to work. The wheels of the world start turning again.

If I stuck to doing nothing for the twelve days of Christmas I would have been leaping or even hopping days ago. I have been working between the holy days but still very much enjoying the few (Red Letter) days off.

The second “humbug-to-Christmas” friend said that, although he can do without it, he knows that I love all sorts of aspects of this holiday.

He is right, I do, but that is only because I do Christmas my way.

I do love many aspects of Christmas and doing them all how I choose, either alone, or with friends or with family. Just as the fancy takes me.

What aspects did I love this year?

I loved buying my tree and having it carried home for me.

I loved decorating it over a few days then spending many hours sitting beneath it reading, writing and model making. Sometimes I sat there doing nothing except looking at the lights and the tinsel.

Now I am loving un-decorating it and lovingly packing the treasures away.

I loved to sit in the kitchen beside the Advent’s crown, making hundreds yes, really, hundreds of hand-made sweeties, 250 in all, to give as presents.

I loved to work on the Christmas market stall, selling for charity stars made by children.

I love to go to work now when so many people are on holiday. I enjoy the quietness of the streets and the emptiness of the trams.

I loved it at New Year at precisely the moment when the church bells began to ring and I imagined that ships would be sounding their sirens, if there were any near enough to be heard.

This year I loved to hang out of the window and commune with the neighbours at midnight.

I also loved, this year, to eat the Christmas biscuits, of which I was given a great many.

I loved the presents that I received, especially as amongst them there were lots of things to play with and read!

I loved collecting rocket sticks on the first day of January when the streets where still quiet and sleepy. I will love using them in my models and in my flower pots.

Yes, I really do love some aspects of the holiday.

I enjoy these aspects because I do what my Mum suggested when I left home at nineteen. At this time she encouraged me always to spend Christmas wherever and however I felt happiest. Many of my happy Christmases were spent with my Mum and my Dad, but just as many other happy ones have been spent elsewhere, either alone or with others.

I think that I might possibly have said “Bah! Humbug” to Christmas too if I spent it in a country with no public transport on the public holidays and no car of my own!

How would I get to visit people I want to be with?

I got my bike out on Christmas Eve to visit my German family but I could just as easily have gone on the tram. It rained later so I travelled home at midnight, on not quite the last tram, with my bike!

I used the same weekend ticket all over the holidays, on trams, buses and trains with and without my bike.

I feel no need to say Bah! Humbug to a Christmas like that.

Notes

Bah! Humbug

1791 – student slang for a hoax or jest
1843 -Charles Dickens, A Christmas Carol, spoken by Ebeneezer Scrooge

The Twelve Days of Christmas -

http://en.wikipedia.org/wiki/Twelve_Days_of_Christmas

Friday, 1 January 2010

Happy New Decade

"In the street where I live" 01.01.10

I have just listened to, and watched, with the rest of Europe millions of Euros go up in smoke.


We are one hour into the new decade, the UK has now joined us, and it is still very loud. The air is getting thicker, sirens wail and the city gets smothered by a blanket of electro and firework smog, it is time to shut the windows!


"Hanging out of the window with the neighbours" January 1st 2010

Tomorrow I will go out in the streets collecting rocket sticks!

These can be very useful in plant pots and when being arty/crafty with the chilldren at work.